Inhibitors are one of the most severe complications of hemophilia. Caeleb’s complications didn’t stop with that diagnosis. He had at least eight ports, as they would become infected or break. Daily ...

Columnist G Shellye Horowitz writes that postponing factor infusions may be tempting, but prophylaxis is better than a bleed.

Columnist Allyx Formalejo reminds readers this National Epilepsy Awareness Month that some stories about epilepsy begin with ...

Biomarin Pharmaceutical is looking to sell off rights to Roctavian, its approved gene therapy for hemophilia A.

Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...

A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...

Healing takes time, writes columnist Jennifer Lynne, who has come to believe that there’s wisdom in slowing down in all things.

Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.

Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.

Taking care of your teeth when you have hemophilia is about more than just brushing and flossing. As a bleeding disorder typically caused by genetic mutations that make it harder for blood to clot, ...

Hemophilia B is a rare inherited disease that makes a person susceptible to excessive bleeding after surgery or an injury. In severe cases, it can lead to spontaneous bleeding episodes that occur ...

Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.