Kelsey Saxon shares how she went from surviving to healing after her son received gene therapy for Duchenne muscular ...
Neuromuscular disease patients and families should help shape drug development from the start, per a panel discussion at MDA Engage.
Elliott Johnson, a podcaster living with Duchenne, along with his able-bodied cohost, advocates across a wider community.
Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Cody Chalfan. I’m 26, from Columbus, Ohio, and I live with Duchenne muscular dystrophy ...
Increasing pain and weakness are making it more and more challenging for columnist Robin Stemple to move his body, especially ...
Rayna Haque reflects on her brother Anjar's life with LGMD, including his passion for wrestling, and his legacy of love and ...
Rather than giving up something he enjoys, columnist Shalom Lim has learned how to adapt to change in the way he accesses ...
Columnist Betty Vertin pays tribute to her 11-year-old daughter, Mary, who is wise beyond her years and always steps in to help.
Columnist Shalom Lim discusses a new independent film in which all of the disabled characters were played by actors with ...
Guest writer Steve Way wants to share the things he wishes people had said to him following his diagnosis of muscular ...
In recognition of Muscular Dystrophy Awareness Month in September, the Muscular Dystrophy Awareness Month campaign features a ...