Inhibitors are one of the most severe complications of hemophilia. Caeleb’s complications didn’t stop with that diagnosis. He had at least eight ports, as they would become infected or break. Daily ...

Columnist G Shellye Horowitz writes that postponing factor infusions may be tempting, but prophylaxis is better than a bleed.

Hemophilia B is a rare genetic bleeding disorder that impairs the blood’s ability to clot properly. It is caused by a mutation in the F9 gene, located on the X chromosome, resulting in a deficiency in ...

Columnist Allyx Formalejo reminds readers this National Epilepsy Awareness Month that some stories about epilepsy begin with ...

Healing takes time, writes columnist Jennifer Lynne, who has come to believe that there’s wisdom in slowing down in all things.

Biomarin Pharmaceutical is looking to sell off rights to Roctavian, its approved gene therapy for hemophilia A.

Biomarin Pharmaceutical is looking to sell off rights to Roctavian (valoctocogene roxaparvovec-rvox), its approved gene therapy for hemophilia A. “As we focus on the business units aligned with our ...

Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.

Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...

Taking care of your teeth when you have hemophilia is about more than just brushing and flossing. As a bleeding disorder typically caused by genetic mutations that make it harder for blood to clot, ...

Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.

Cazandra and Joe MacDonald share their 37-year journey together, from a chance meeting in college to raising two sons with severe hemophilia. They reflect on parenting with chronic illness in the ...